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Muscular Dystrophy News
13 小时
Going gray prompts questions about the impact of caregiving on my life
Columnist Betty Vertin is going gray — as in, she's decided to stop coloring her hair. Did DMD play a role in this decision, she wonders.
Muscular Dystrophy News
1 天
DMD treatment SMT-M01 gets FDA orphan drug, rare disease tags
DMD treatment SMT-01, a cell replacement therapy, received FDA orphan drug and rare pediatric disease designations.
Muscular Dystrophy News
2 天
Overcoming mental hurdles as I transition to using a walker
For a long time, columnist Robin Stemple resisted using a walker to navigate around his home, but eventually, he had to put ...
Muscular Dystrophy News
3 天
Why patient advocacy is important for those of us with Duchenne
Last Saturday, I had the honor of participating in the third Singapore Health Patient Advocate Connection event (SPACe) ...
Muscular Dystrophy News
4 天
Losmapimod fails to significantly improve FSHD outcomes: Study
Losmapimod, an investigational medication from Fulcrum Therapeutics, failed to significantly outperform a placebo at ...
Muscular Dystrophy News
8 天
NS Pharma DMD treatment gets FDA rare pediatric disease status
The U.S. Food and Drug Administration granted rare pediatric disease designation to NS-050/NCNP-03, an exon-skipping DMD ...
Muscular Dystrophy News
10 天
Atamyo, Dion Foundation partner to expand LGMD study into US
Atamyo has partnered with the Dion Foundation to expand into the U.S. a clinical trial testing the gene therapy ATA-200 for ...
Muscular Dystrophy News
11 天
How my late brother and I left a mark on our DMD community
Columnist Shalom Lim reflects on how he and his late brother, Isaac, left their mark on the Singaporean DMD community as ...
Muscular Dystrophy News
3 天
Working Through the Process - a Column by Robin Stemple
Kevin Schaefer, the associate director of community content at Bionews, the parent company of this website, recently shared a thought-provoking article from Psychology Today titled “How Chronic ...
Muscular Dystrophy News
11 天
Teaching students about life with limb-girdle muscular dystrophy
For columnist Patrick Moeschen, a teacher and wheelchair user, each school year is an opportunity for teaching students about ...
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